Monday, August 10, 2009

Heard in the Halls July 22, 2009 - #10

NAMI North Carolina's
Heard in the Halls
House and Senate Adopt Budget August 7 2009
Number 10
Quick Links
It's been a very long and painful legislative session, with many highs and lows.  Those will be the focus in the edition of Heard in the Halls
 
I also remind you to submit nominations for our annual awards (due August l5) and for Heroes in the Fight (August 27)
 
Thanks to all of you for the advocacy work you've done this session - it has paid off for our cause. 
How did Mental Health fare in this year's budget?
 
Open Access to Medication - a victory, but the jury's still out...
There was a huge threat this year to eliminate the "carve out" to the prior authorization requirements for medicaid funded drugs.  In effect, we continue to be an exception to the rule that people must get approval before getting a particular drug.   Research indicates that any barrier to getting medications can result in adverse effects,  It was all driven of course by money, and a need to balance the state budget in hard times.  Many advocates banded together- the grassroots were engaged, and we won!  The exemption remains but there will be closer scrutiny to what medications work, and cost with the following requirements:
 
  • The Dept may develop guidelines and measures to ensure appropriate usage of medications, including dosages
  • The Dept may require retrospective clinical justification for the use of multiple psychotropics
  • For those l8 or under who have 3 or more psychotropics, edits with target inefficient, ineffective, or potentially harmful patterns.  When that is identified, a peer to peer consultation will be required 
  • There will be an emphasis on using the Prescription Advantage List (meds that work and are cost effective) , using more generics, and enhancing rebate collections

Medication committees will adopt policies and procedures on the preferred drugs as follows: 

  •  guidelines for review of drugs for inclusion
  • manner and frequency of audits of the list for appropriateness, cost effectiveness
  • an appeals process
  • all classes of drugs will be included

Additional changes will result if the Department cannot demonstrate by June l, 2010 savings of $25 Million

 
Peer Support  and Community Support
 
Definitely a good news, bad news report
 
First, Community support will be ending on or before June 30, 2010.  The Division is working hard on discharge planning and transitions, when appropriate, to other services. 
 
The Department shall submit to the federal government revised service definitions that separate case management from the Community Support Definition, and they will submit a new service definition for peer support services for adults with mental illness and/or substance abuse disorders.  This is HUGE news- and a very big victory for NAMI NC.  This was one of our high priorities on our legislative agenda.  It will take a long time to build the infrastructure, but individuals in recovery will be able to have paid positions to help others - particularly as they transition out of corrections, institutions, crises, etc. 
 
Other stipulations:
  • no new admissions will be allowed during this transition unless the Department determines appropriate alternate services are not available 
  • Authorizations currently in effect remain valid
  • No CS will be provided in conjunction with other enhanced services (note- it may be used to help with discharge planning for level II I and IV group home transitions for children
  • Moratorium continues on endorsing new CS providers
  • Paraprofessional level will be eliminated in 60 days of enactment
  • 65M in 2010 will be cut 97.5 M in 2011

A stakeholder committee has been established to help with the transitioning of people (14,107 adults, 23,523 children) and NAMI NC is at the table.  A subgroup of this group will also help with the review/development of a peer support definition.  NAMI NC has facilitated a group working on that task for over a year so all that work will be submitted to the Department.

We are absolutely thrilled to be moving on peer support!!

 
 
Capital Sentencing Bill HB 137 (anti death penalty bill for those severely mentally ill at the time of the commission of the crime) 
What an effort was made this year to have our state become the second in the nation to have such an enlightened piece of legislation...but in the final moments of the session, it was not to be.  Politics got in the way- too many controversial bills- too many re-elections.  But the good news is that we had the votes!!  We will try to intervene with the Governor if they do restart executions and there is someone with a mental illness in that group.  Our other ideas is to wait for the spring short session.  We will need your help in working on those legislators who were a "yes" but might need more education back at home. We have a wonderful session on this at our annual conference.  Thank you so much for all your work in lining up the votes.  Be looking for news on progress next year.
 
More to come:  a special edition focusing on children's changes in residential group homes (level 3 and 4 cuts in funding) and alternatives. 
 
 
Don't forget to nominate someone that has made a difference in your life!  Right now, NAMI North Carolina members have 2 opportunities to give recognition to those who go the extra mile for individuals and family members with mental illness:

1)  NAMI North Carolina Awards - to be presented at the 2009 Annual Conference
2)  Heroes in the Fight - a partnership with Eli Lily and other mental health organizations in North Carolina - and across the country
  • for more information, go the the Heroes in the Fight website and download application or get it off of the NAMI North Carolina site:  Due August 27th



Deby Dihoff, MA

Executive Director

 

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This email was sent to naminc01.raleigh@blogger.com by ddihoff@naminc.org.
National Alliance on Mental Illness North Carolina | 309 W. Millbrook Rd. | Ste. 121 | Raleigh | NC | 27609

Wednesday, July 22, 2009

Heard in the Halls July 22, 2009 - #9

NAMI North Carolina's
Heard in the Halls
Budget Breakthroughs?
H 137 - passed Appropriations 

July 22 2009
Number 9
Quick Links
While Deby is out of the office - I will be sending periodic emails to help keep our constituents up-to-date with legislative issues. 

Thank you so much for your continued advocacy efforts - keep calling your legislators - your calls are making a difference.  Our legislators need to continue to hear from our NAMI members "North Carolina's Voice on Mental Illness."

Susan King Cope
Development and Special Events Director
National Alliance on Mental Illness NC
The Legislature has reached a tentative agreement on a revenue package that would raise $990 million. The package would raise the sales tax by ¾ of a cent or 1 cent, add a 2% surcharge to the income tax, and increase the cigarette and alcohol tax. House and Senate leaders will work out the details over the next several days. It appears that we're approaching the end, though a meltdown is always possible.
 
This inclusion of additional revenue in the final budget package is a big victory, and we should feel great about what we've accomplished this legislative session. Just a few months ago legislative leaders were saying that raising additional revenue wasn't necessary and wasn't a possibility - now they are ready to raise nearly ONE BILLION dollars to mitigate the worst cuts to critical public investments like education, health care, and job training just to name a few.  The final budget won't be pretty, but it could have been a lot worse.

While leaders in both chambers have reached an agreement, it still might be necessary to put some pressure on rank and file members to pass a budget with the revenue package, so keep your eyes and ears open for a final call to action.

What can you do to help? Time is short. Legislators need to hear from you today.   Email your legislators and tell them to say "NO" to devastating budget cuts and "YES" to a balanced solution for the state budget that enacts smart cuts and raises new revenue. If we pull together, we can get through this budget crisis. Keep up the great work! 
 
Susan King Cope
Development and Special Events Director
NAMI North Carolina
On Wednesday, July 22nd members of the Education Appropriations Committee voted 7:4 in favor of HB 137:  Capital Procedure/Severe Mental Disability which would exclude individuals with mental illness from from the death penalty if they had a severe disability at the time the crime was committed.  This bill would also allow defendants a "guilty" verdict - whereas currently, they must enter a plea of not guilty and move into full court proceedings.

There was much discussion about the bill and confusion regarding what and when the bill would be applied.  There was also much discussion about the proposed "savings" the bill would provide the judicial system.  In the end - members across party lines determined that the bill would protect those with mental illness and moved for a favorable vote.
 
This is a great step on the progression of this bill and it is because of the many calls from NAMI NC membership that helped the HB 137 make it through Committee.  The bill will now move on to the House for a vote!
Don't forget to nominate someone that has made a difference in your life!  Right now, NAMI North Carolina members have 2 opportunities to give recognition to those who go the extra mile for individuals and family members with mental illness:

1)  NAMI North Carolina Awards - to be presented at the 2009 Annual Conference
2)  Heroes in the Fight - a partnership with Eli Lily and other mental health organizations in North Carolina - and across the country
  • for more information, go the the Heroes in the Fight website and download application or get it off of the NAMI North Carolina site:  Due August 27th
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This email was sent to naminc01.raleigh@blogger.com by ddihoff@naminc.org.
National Alliance on Mental Illness North Carolina | 309 W. Millbrook Rd. | Ste. 121 | Raleigh | NC | 27609

Wednesday, July 15, 2009

Heard in the Halls July 15, 2009 #8


NAMI North Carolina's
Heard in the Halls
Budget still not passed
HB 137 - passed committee
Nominations for NAMI Award and Heroes in the Fight
July 15 2009
Number 8
Quick Links
While Deby is out of the office - I will be sending periodic emails to help keep our constituents up-to-date with legislative issues. 

Thank you so much for your continued advocacy efforts - keep calling your legislators - your calls are making a difference.  Our legislators need to continue to hear from our NAMI members "North Carolina's Voice on Mental Illness."

Susan King Cope
Development and Special Events Director
National Alliance on Mental Illness NC
On Tuesday, July 14th members of the J1 Committee voted in favor of HB 137:  Capital Procedure/Severe Mental Disability which would exclude individuals with mental illness from from the death penalty if they had a severe disability at the time the crime was committed.

This bill would also allow defendants a "guilty" verdict - whereas currently, they must enter a plea of not guilty and move into full court proceedings.

This is a great step on the progression of this bill and it is because of the many calls from NAMI NC membership that helped the HB 137 make it through Committee.  The bill will now move on to Appropriations and then to House.
Today, July 15th, the Continuing Resolution allowing legislators to continue budget negotiations will expire. Unfortunately, they have still not come to agreement on the budget and don't seem any closer to an agreement then they were two weeks ago. It's almost certain that they will pass another Continuing Resolution before Wednesday, so that negotiations can continue.
 
The Governor also released a tax plan last week that represents a combination of the House and Senate plans. The plan adds up to $1.6 billion in new revenue this fiscal year and $1.7 billion next fiscal year. It's unclear what impact the Governor's announcement will have on negotiations between the House and the Senate.
 
While it's obviously important for the Legislature to create the best budget possible, functioning without a permanent budget for a long period of time can be very damaging. It puts local governments and state departments (like HHS) in a difficult holding pattern during which they must make large discretionary cuts that will invariably change once the Legislature passes its more specific budget.
 
Furthermore, everyday we fail to pass a revenue package, we lose millions of dollars. If we had passed a budget by the July 1 deadline, the state would be collecting new revenues right now. The only way to make up for this lost time is to increase tax rates more than we're already going to.

Our state leaders must take a balanced approach to the current budget shortfall, and that means raising revenues. Without new revenues, legislators will be forced to make massive cuts that will cause tremendous pain in the short-term, and jeopardize our long-term prosperity. The Governor, the Senate, and the House have all proposed budgets that include new revenues, and that's progress. The Governor has called on the House and Senate to raise $1.5 billion in new revenues.  Now it's time for our state leaders to come together and agree on a budget that's good for all North Carolinians.

What can you do to help? Time is short. Legislators need to hear from you today.   Email your legislators and tell them to say "NO" to devastating budget cuts and "YES" to a balanced solution for the state budget that enacts smart cuts and raises new revenue. If we pull together, we can get through this budget crisis. Let's get to work!
 
Susan King Cope
Development and Special Events Director
NAMI North Carolina
Don't forget to nominate someone that has made a difference in your life!  Right now, NAMI North Carolina members have 2 opportunities to give recognition to those who go the extra mile for individuals and family members with mental illness:

1)  NAMI North Carolina Awards - to be presented at the 2009 Annual Conference
2)  Heroes in the Fight - a partnership with Eli Lily and other mental health organizations in North Carolina - and across the country
  • for more information, go the the Heroes in the Fight website and download application or get it off of the NAMI North Carolina site:  Due August 27th




Wednesday, July 8, 2009

Heard in the Halls July 8, 2009 #7


NAMI North Carolina's
Heard in the Halls
Update on budget cuts- community support, open access to medications July 8 2009
Number 7 
Quick Links
While Deby is at our National Convention in San Francisco - I will be providing short updates about what is happening at the NC General Assembly.  Many thanks to Coalition Members for forwarding timely information to me for use.
 
Susan King Cope
Development DIrector
National Alliance on Mental Illness North Carolina
Budget Update:
 
Yesterday the Governor sent a letter to the members of the North Carolina General Assembly urging them to raise revenue to protect vital services in our state including education, public safety and healthcare.  Included in the letter was a specific proposal to for revenue that would raise $1.6 billion in the first year and $1.7 billion in the second year through modernization of our tax code, temporary taxes and targeted tax relief. The Governor's office has stated that the proposal, combined with $3.8 billion in budget cuts and $2.4 billion funds form the federal government would balance the budget while still ensuring we meet the most critical needs of NC citizens.
 
This letter comes at a critical time: House and Senate Conferees are still at odds over cuts and cannot agree on tax revenue packages. The Senate has been pushing for increases that would total $15 billion, while the House is reluctant to extend revenue increases beyond $1 billion, nor can they agree on the kind of revenue changes that would make up the compromise package. Without agreement on the sources and amounts of new revenue, budget negotiations must continue based on an assumption of around $900 million being added back into the budget. The Senate passed an open ended continuing budget resolution that would keep the state operating at 85% of its current funding; the House amended the Senate resolution but limited it to July 15.
 
The state cannot continue to operate with a temporary budget that cuts 15% of state funding; In HHS some programs such as state institutions cannot operate at 85% of funding so a greater percentage of funds are being withheld from state funded services and supports to people with disabilities. We need the Legislature to pass a reasonable revenue package and prevent devastating cuts to services and supports to people with addictive disease, mental illness and developmental disabilities. These cuts, as they stand, without additional revenue, will result in the closure of programs, the loss of tens of thousands of jobs, and leave people without the services they need and are currently receiving.    
 
 
ACTION:
 
Call your State Senator and your State House Representative and tell them you support the Governor's proposal for increasing revenue, and ask that part of these new revenues go to support services and supports in MH/DD/SA, including Medicaid. You can find contact information for your NC General Assembly representatives at www.ncleg.net  under "Representation" or http://www.ncleg.net/GIS/RandR07/Home.html.
 
Please personalize your message with information about the reason these services are so important to you, those you serve, and your community.
 
 
Message:
 
I support the Governor's proposal for increased revenue. Part of any increased revenue needs to go to mental health, developmental disability, and addictive disease services, including those in Medicaid. The state budget cuts are still too deep and will devastate services and supports and result in the loss of thousands of jobs.


Thank you for your continued support!
 
Susan King Cope, NAMI North Carolina


Heard in the Halls July 3, 2009 #6


NAMI North Carolina's
Heard in the Halls
Update on budget cuts- community support, open access to medications July 3 2009
Number 6
Quick Links
Welcome back to NAMI NC Heard in the Halls. I hope to bring you direct information on what is happening in the general assembly regarding issues that touch you and your family members.
Deby Dihoff
Executive Director
National Alliance on Mental Illness NC

When, oh when will we have a budget?
And time just keeps passing ...with still no budget. Each day that passes with no budget means the amount of time to deal with the crisis has lessened, making the solutions harder. The continuing resoluton requires a l5% cut but who decides where, and when? There is no agreement on both sides of the general assembly; the Senate supports revenue packages of $l.5B (along with the Governor), but the House is not comfortable with that amount. And the role of the Governor right now is not clear either. Ask your legislators to get a budget adopted, and to put revenue increases if adopted towards restoring some services for people with mental illnesses- like community support and access to medications. PLease ask them to consider long overdue modifications to our outdated tax codes as part of the overall solution.
What are the latest cuts in Community Support (CS)?
Your advocacy efforts are working, because the previous across the board cuts (over two years) to Community Support have been scaled back. Still huge cuts, but a little more flexibility. Please remember that these cuts are a moving target until both the House and Senate come up with an agreed upon budget. Which means you can still make a difference.
The latest shows CS with a cut of $65M year one, and $97M year two. The second year represents 80% of the previously allocated service dollars - so still a huge, sweeping cut to CS, and remember: this affects perhaps 37000 people, with 75% of them being children. We're hoping many of these children can receive a higher level of service like intensive in home, which they probably need.
Yet another consequence of the massive curtailment of services in medicaid is it probably will eventually mean a rollback in the medicaid block grants which are tied by formula to medicaid spending.
When our state elects to discontinue a service, or radically curtail a service- for each dollar we put in, the feds put in 3 dollars. So you can see the other consequences- not only people not getting services they need, but jobs are lost, economies worsen, communities suffer. Ask your legislators to:
1. Restore matching state funding to earn us $l.45 B in federally funded services. Don't be penny wise, pound foolish!
2. Restore adequate funding to CS - that has to be more than 20% of the current level.
3. Question the wisdom of the consolidated Case Management and whether there will be sufficient resources to deal with the massive movement/transitions caused by these cuts- kids moving from group homes, adults and kids both losing community support.
4. Explain the domino effect of each of these separate cuts- loss of CS leads to loss of overall community stability- possible onset of crises, hospitalization. Ditto for loss of access to medications
Capital Sentencing SB 309, HB 137
Let's not forget this very important bill! We have a chance to get this bill heard, and with luck, passed! You must call your legislators- anyone on Judiciary l, or anyone on appropriations- start with the House side! And you must do this by Tuesday of next week. We expect the committee, J-l, to hear this either Tuesday or Thursday of next week; we expect it to pass there, and go straight on to appropriations. That will be a struggle, and we need your calls.
Open Access to medications
It's not looking that good for maintaining open access to medications- the House is looking to save $40M by instituting a preferred drug list. For years those on medications treating mental illness have been exempt from these requirements - and bureaucratic managed care practices like prior authorizations, fail first, etc. There is good work going on to investigate other ways to save this money- like educating prescribers, starting wtih those inpatient settings where polypharmacy starts. Studies show those who have barriers to getting their drugs have 3.6 times as many adverse effects (ER visits, inpatient, even jail..)
Action: Tell the House and Senate Budget and Finance Chairs, and the leadership that you oppose a preferred drug list for mental health, and share your personal stories of how long and arduous is the journey to finding the right mix of medications for your own recovery.
Make a call to your legislator on Monday!! It works. Thanks for all those efforts.
And have a happy fourth.
Deby Dihoff, MA, Executive Director



Heard in the Halls July 1, 2009 #5



NAMI North Carolina's
Heard in the Halls
Report on planned cuts to children's group homes and other children's legislation July l 2009
Number 5 
Quick Links
Welcome back to NAMI NC Heard in the Halls.  I hope to bring you direct information on what is happening in the general assembly regarding issues that touch you and your family members. 
 
Deby Dihoff
Executive Director
National Alliance on Mental Illness NC
No Budget-
Everyone's heard that we don't have an approved budget yet- we have a continuing resolution to keep paying for state services, with an overall cut of 15% in spending, while the Senate and House try to resolve their differences.  Much of the disagreement is around the increased revenue package- the Governor is pushing for $1.5 M, and the House is not in favor of that big of an increase.  All this is showing how much the advocacy for a balanced approach- both revenue increases, and spending cuts- is working! If we are successful in getting an increased revenue package we must still fight to see that these new revenues are applied directly to restore services that people living with mental illness need. 
 
In the midst of that, we are still facing unprecedented cuts to services and supports for people with mental illnesses- particularly Community Support and Level 3 and 4 Group homes.  This addition will focus on the planning that is being done to transition children safely from these facilities to other treatment options. 
 
Let's start with the good news- passage (by one vote!!) of the anti-bullying bill: 
 
School Violence Prevention Bill Passed with a Vote of 58-57
 
The School Violence Prevention Bill was passed and sent to the Governor's desk on June 24th much to the excitement of many child and family advocates. To summarize, this bill protects any student or school employee who experiences an act of bullying or harassment on school grounds or during school sponsored activities. The bill defines bullying or harassing behavior as acts being motivated by actual or perceived differentiating characteristics such as race, religion, physical appearance, sexual orientation, mental, physical, developmental, or sensory disability, etc. A policy prohibiting this behavior should be adopted by each local school administrative unit before December 31, 2009. For more information on this bill, visit the General Assembly website at: www.ncleg.net/ and type in S526 in the "Find Bills by Number" area.  Please thank your legislators for supporting this bill (you can look up how they voted on the General Assembly site)
 
Level 3 and 4 Group Homes
In the last Heard in the Halls, we talked about appointing a transition committee to help with the many details of such a huge change - well, that's been done!  And there are at least three people representing the needs of families and consumers living with mental illnesses, including myself.  This is a moving target- last week group homes were to be completely cut, this week, it has been modified so that the length of stay will cap out at 120 days total. (advocacy works!!)  The following changes will be made:
 
2010  15.8 M cut   (representing about 1/3 of the present funding level)
2011 22.5 M cut  (representing about 1/2 of the present funding level)
 
Therapeutic camps will be closed completely- due to federal issues
Any setting with more than l6 beds (except psychiatric residential treatment facilities) will close due to federal compliance issues 
 
Timeline:  October
 
What are the changes you can expect if you have a child in a level 3 or 4 group home?
  1. The Division will emphasize therapeutic family services in lieu of group homes, as well as services that support families - like intensive in home and multisystemic therapy
  2. The eligibility and continued stay criteria will be modified for level 3 and 4 homes
  3. During treatment at those homes, there must be parental involvement, and community involvement
  4. The homes must receive national accreditation within one year; those who have accreditation already will be "preferred providers"
  5. Before admission to a group home, there must be a step down plan- return to home, or alternatives, and a discharge plan
  6. Stays will not exceed 120 days
  7. Exceptions will require an independent assessment

Why the Changes?

Two things are driving this- the economic downturn with the need to make cuts, and the fact that group homes are not a best practice model- it is widely known that they don't really result in the best outcomes for kids and families.  What does work are excellent clinical services that bring help to the family - intensive in home and multisystemic therapy, and day treatment.   We must add to this support for families- crisis facilities, wraparound, and respite care.  The federal government is clamping down as well- they don't want to continue to fund practices that don't work, and the state has determined it is a matter of time- six months, twelve months max until these services are completely disallowed by the federal government.  But at the same time, we must make sure these 2000 or so kids in these homes experience a smooth transition to a more appropriate service.  Yet, there are no new funds to help businesses create more capacity for the things that work- intensive in home, multi systemic therapy.
 
What are the numbers?
Day treatment capacity - 139 programs
Intensive in home - 446 providers
MST - 31 providers
PRTF (Psychiatric residential treatment facilities ) - 325 beds
Level III homes -2253 beds
Level IV beds - 199 beds
Level II family type (therapeutic foster) - 5553 beds
 
Implementation 
Excellent planning is occurring involving many stakeholders, including family members and others representing those with mental illness.  Here's some of what will be done to attempt to have a smooth implementation: 
 
  • Letters to all providers, and to families
  • Protocols for planning for the child and family teams
  • Some discussion of rate incentives to get people to provide what works, not to drift towards the group models of service
  • Lists of how many kids are involved by county
  • Work on assessing kids - to make sure safety is protected
  • Lists of options - especially those accredited
  • Tracking of movement- some level 3s moving to PRTF
  • Getting new service definitions approved for therapeutic foster and for crisis centers for children
 
Big questions that remain:
Children transitioning from a group home will need case managers to help them navigate to a new, more appropriate service.  And all of that is up for discussion with the severe cuts to community support.  Paraprofessional services is on the block for cutting completely from CS, which endangers the needed wraparound services.  The next Heard in the Halls will focus on that crisis.
 
Often, it takes a crisis to move systems to make the big changes that are necessary to move towards things that work, not just what is comfortable or has been done.  We must challenge our state to handle this correctly, to make the big changes necessary, but to protect every single child and family during what is bound to be a difficult process.  These children came to these programs because of their problems, but now it is a systems problem - not the children's problem- and we owe it to them to not compound their issues with traumatic change. 
 
What can you do?
 
Contact the House and Senate Leadership - tell your story; ask that funding be provided to build up the services that work.
 
Keep up the advocacy - it works.
 
Deby Dihoff, MA, Executive Director